This baby's death is a good reminder of the fragility of these pre-term babies. A good report one day is no guarantee that everything will be okay the next day. Mike and I have been on edge with Flara all week since the past weekend. Last night was no better. I am so thankful that despite our fears, we still have our sweet girl. I know in an instant, though, that we could be in a similar situation.
During our entire visit last night, Flara just would not keep her heart rate up. She wasn't gripping my hand the way she usually does. She was having temperature instability. Oxygen needs were increasing. It was really scaring me. Our nurse had asked the doctors about sending labs to check if she was getting sick again. At that point, they were still making a decision. Flara did wake up during the last 15 minutes of our visit. When she was awake, she did better. She was very bright-eyed, and seemed to really be listening to Mike and me talk to her. Even though she did wake up, I didn't want to leave. I told Mike I wanted to stay at her bedside all night. Even though we couldn't hold her, I just wanted to be there. Mike told me to stay, and told me he would get me in the morning. I decided I just needed to go home and rest. By time we made it home and settled into bed, our nurse called and said the doctors did decide to check labs, send a blood culture, and increase the rate on her Nasal SIMV. I was so thankful.
I slept fitfully, had dreams about my little girl, and woke up just at the time I could call the NICU. I was so thankful to hear that her labs looked perfectly normal, so there was nothing indicating an infectious process in the making. Also, Flara had not had any heart rate drops and apneic spells since 0200. She was back on 21% oxygen. Apparently, the rate increase helped her tremendously. She also had gained weight again and is now 2 lb 9 oz.
I still wish I could hit a fast-forward button on my life and set it for late December.
Thank you Suzanne for talking to that family that lost thier baby. Even though you didn't want to,You did. What a great way to minister to them. I am sure you made them feel better. So often no professional takes the time just to talk, to comfort. Love ya.Rhonda
ReplyDeleteI'm so happy you comforted this family and showed them how to lean on Jesus; His love will carry them through this valley.
ReplyDeleteKeep listening to Him and doing as He asks especially when you don't feel like it. Your pushing Satan aside and showing them God through your actions will be rewarded. Love you